Home
About Us
Search Fact Sheets
Information Centre
Checklist
How you can help
Update Us
Donate
Tell your story
Latest News
Contact Us

Site Map

Information Unavailable!

« Back

A useful guide to points worth considering before embarking on a new treatment or therapy. CLICK HERE

See more stories, or tell us yours Click Here

Alex's and my story

Alex was born with rare genitic disorder called Pelizaeus-Merzbacher Syndrome were it affects his nervis system nd their are 4 type and he has the READ MORE...

Kathleen's Struggle

Kathleen did not move much in utero. The doctors forecasted that she would probably have a cleft lip. Further tests didn't clearly indicate READ MORE...