How you can help

...with information

We would like to hear from you if you have personal experience of therapies and treatments or are professionally involved in any aspect of the treatment of severe disabilities, rare disorders, chronic syndromes, behavioural problems or chemical imbalances. See Update Us.

...with money

We also need considerable financial help. The Henry Spink Foundation needs significant funding to achieve its ambitious aims to provide vital services. We are independent which allows us to provide the widest range of unbiased information, but it also means we rely completely on charitable giving from individuals, trusts and sponsors. We urgently require funds to increase the service the Resource Centre for Information provides and to plan our first Centre for families.

Click here for a full list of information fact sheets

Checklist

A useful guide to points worth considering before embarking on a new treatment or therapy. Click here

Your stories

Alex's and my story

Alex was born with rare genitic disorder called Pelizaeus-Merzbacher Syndrome were it affects his nervis system nd their are 4 type and he has the …

Kathleen's Struggle

Kathleen did not move much in utero. The doctors forecasted that she would probably have a cleft lip. Further tests didn't clearly indicate …